It would be hard enough for many people to imagine what it would be like to have a child who suffers from a severe form of epilepsy. If you think that’s hard enough try to imagine having to leave your significant other and children to go to another state all the meanwhile basically put your life and the life of your child in the hands of others. This is exactly what is going on for one family as you read this.
Melissa Ragsdale had to make the hard decision yesterday of leaving her home, her husband, and her other children in Kansas to take her child Gavin who suffers from a severe form of epilepsy known as Myoclonic Astatic Epilepsy-Doose Syndrome to Colorado to obtain cannabis treatment which is not available or even legal in Kansas.
The specific form of epilepsy that Gavin suffers from causes him to have 6 different types of seizures which all seem to be triggered worse by the pharmaceuticals he is prescribed. It is also very resistant to most typical seizure medications.
On November 13th Gavin was admitted to the hospital for the first time in 3.5 years after he saw a rapid decline in his status and had been suffering relentless seizures. Due to the resistance of his condition medications and treatment options were very minimal and after testing Gavin was released but unfortunately continued to suffer many seizures.
Yesterday he endured 2 grand-mal seizures. This is when Melissa and her family made the decision that enough is enough and were able to get on a train headed for Colorado thanks to the generosity of the community.
Melissa and Gavin are safe now in Colorado after a long excruciating train ride, but this is only the beginning of this chapter of their journey and they need our help. It is going to be a process to get them settled and to get Gavin legal access to cannabis treatment, but it can and will be done. Please if possible donate anything you can to this loving family.
I can only imagine the fears they have and the pain they must feel being torn from their family especially during the holidays. There is a GoFundMe set up for Gavin which you can find here. Please remember to share with others because every dollar counts and will help this family more than you could imagine. Thank you all and remember Granny loves you!